Annual Report 2019

Section of Data Science Strategy

Takashi Kohno, Hirokazu Fukuda, Katsuya Tsuchihara, Shimon Tashiro, Genta Ohno

The Team and What We Do

 The mission of this section is to establish policies on how to collect and utilize genomic and clinical data of patients who received gene panel tests under the National Health Insurance System. The first one is on informed consent (IC) and it is established through a joint effort with Core Hospitals for Cancer Genome Medicine. The model IC form and S.O.P. for gene panel tests are prepared through discussion. The second one is to provide the collected genomic and clinical data for physicians and researchers of industrial and academic institutions. This section will help conduct a review board to provide the C-CAT data to those parties.

Activities

 Videos and a pamphlet for patients to understand gene panel tests, IC and data submission to C-CAT were made before starting gene panel tests under the National Health Insurance System in June 2019. The policy on utilization of genomic and clinical data collected in C-CAT have also been established. The basic design of a portal site system to share C-CAT data with faculties of the Core and Liaison Hospitals for Cancer Genome Medicine as well as researchers of industrial and academic institutions has also be made.

Future prospects

 The portal site systems to share C-CAT data with faculties of the Cancer Genome Medicine Hospitals as well as researchers of industrial and academic institutions will be constructed. A review board to provide the C-CAT data to those parties will be also prepared.